Registration is now open for ResearchCon 2025, a free event the Cystic Fibrosis Foundation assembles each year for researchers, doctors, and patients to share and discuss the latest advances in research and clinical care in cystic fibrosis (CF). This virtual event, set online for May 6, provides…
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The Cystic Fibrosis Foundation (CFF) has published updated newborn screening (NBS) guidelines to help ensure better equity in the diagnosis and treatment of cystic fibrosis (CF) in the U.S. A key recommendation is that, should an initial NBS result be positive, follow-up genetic testing should involve all possible…
To follow my column last week about the rate of divorce after surviving advanced cystic fibrosis (CF) and double-lung transplant, this week I’ll focus on the intricate balance of living while dying. Don’t get me wrong, the improvement in my lung health since my transplant four years ago…
Note: This column describes the author’s own experiences with various vitamin supplements. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. My hair has been falling out. It’s most obvious in the shower, when I’m rinsing away shampoo and conditioner…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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